editor
The Parents of Children Living with Epilepsy Foundation has initiated a campaign to raise awareness about the condition, citing a decline in clinic attendance due to various challenges, including insurance issues.
Dr. Said Kuganda, a Health and Mental Illness Specialist at Muhimbili National Hospital (MNH) and Chairman of the foundation, shared these comments during the campaign launch at the hospital.
According to him, previously the facility had a “dedicated fund” where they solicited for donations to increase funds and acquire specific medications in readiness for those who are unable to obtain it.
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“With the introduction of health insurance, many children enrolled, making common medications accessible through insurance. Consequently, the momentum of our fund declined as more individuals, including adults, opted for health insurance.
“Regrettably, the children’s insurance was discontinued to introduce a superior one. As the improved insurance has not been implemented yet, we are facing challenges.
The greater majority of parents are expressing dissatisfaction and practically avoiding clinic visits due to being asked to purchase medication as the insurance is no longer operational.”
“We are confronted with this predicament and urge the community to unite their voices and collaborate to address this issue.
While acknowledging the government’s efforts, we advocate for increased awareness that some individuals with epilepsy lack insurance coverage, making access to services difficult and resulting in reduced clinic visits.”
Dr. Kuganda emphasized their reliance on the government for continued support and expressed optimism that services for individuals with epilepsy would improve. He stressed the importance of advocating for those facing challenges due to lack of insurance coverage and urged the government to address these issues promptly.
Acknowledging recent advancements in including new medicines in the insurance package, Dr. Kuganda highlighted the persistent issue of individuals lacking insurance coverage. He underscored the impact on children with epilepsy who frequently fall ill and are unable to attend school due to insurance-related hindrances, ultimately affecting their access to treatment.
The campaign launched by the foundation is set to span a year, culminating in a national dialogue on epilepsy by November to explore strategies for supporting individuals living with the condition.
